Here you will find curated book lists provided by advocacy groups to help others learn more about life with the condition(s) they focus on.
Books recommendations are linked up to interlibrary loan databases to assist you in finding these materials in your local library.
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Recommended Reading From HCU Network America
The mission of HCU Network America is to help patients with HCU and related disorders manage their disease and to find a cure. These are books that were reccomended to learn more about a variety of genetic conditions. You can learn more about their work at hcunetworkamerica.org No Day Wasted: The Adam Settle Story About…
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Recommended Reading from the MAGIC Foundation
The MAGIC Foundation is a charitable non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth. The MAGIC Foundation’s mission is to reduce the emotional and physical trauma caused by growth disorders, resulting in healthier,…
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Recommended Reading from the Children’s Craniofacial Association
The Children’s Craniofacial Association (CCA) supports the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. These are the books CCA recommends if you are looking to learn more about lived experience with a facial difference. This list is adapted, with permission, from their resources page on the CCA website. Click the buttons…