READING Frame
Making Books About Genetic Conditions More Available
A Resource Sharing Project
This site-in-progress will consolidate books about living with various genetic conditions. Our goal is to make this a centralized resource that is not only used within the medical genetics community but shared freely with public libraries. Books about genetic conditions are usually niche subjects and increasing access to these topics for patrons could help increase awareness and provide more resources to the public.
In addition, we will also have a section of the site dedicated to “Recommended Reading” where advocacy organizations for those living with a genetic condition can suggest books that may be helpful as bibliotherapy to individuals or families on their diagnostic journey.
Why contribute your book?
1) It can help others know what topics have been addressed so far
2) It can help identify gaps in available resources
3) It can increase the possibility for your book to be recommend to others
4) It can provide an opportunity for people to learn about genetic conditions they would otherwise not know about
What Does Reading Frame Offer?
Digital Book Library
Find and read books written by those in the genetics and rare disease community.
Recommended Reading
Advocacy organizations can share books that highlight the experiences of living with a genetic condition.
Public Library integration
Books suggested by advocacy organizations can be searchable within the Colorado Public Library system.
Find a Book Recommendation
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Recommended Reading From HCU Network America
The mission of HCU Network America is to help patients with HCU and related disorders manage their disease and to… Continue Recommended Reading From HCU Network America
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Recommended Reading from the MAGIC Foundation
The MAGIC Foundation is a charitable non-profit organization created to provide support services for the families of children afflicted with… Continue Recommended Reading from the MAGIC Foundation
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Recommended Reading from the Children’s Craniofacial Association
The Children’s Craniofacial Association (CCA) supports the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. These are… Continue Recommended Reading from the Children’s Craniofacial Association